Playing the waiting game & other news

Hi all, it feels like I am in a waiting area, trying to keep busy and calm while I wait for my liver to recover from my last attempt at Ribociclib. It looks like I will (hopefully) only have another 2 weeks to wait if my liver continues to improve at the current rate. I have my fingers and toes crossed!

I will also be having some new pictures (aka CT scans) done in 2 weeks. Just to check in and hopefully see some more shrinkage!

I had my first dose of the Covid vaccine last week, which made me feel extra lousy for a couple of days, but I am back to (my current) normal now. As I am under 50 I had the Pfizer dose, and the side effects I had were not unusual. I chose to have the vaccine as my oncologist encouraged it, as my medication can make me immunocompromised.

To keep busy I have been continuing to declutter, reorganise and have been playing in the garden. Thanks to my husband's awesome Aunt Pauline, plus some help from my parents in law, I now have an organic veggie garden! I currently have spinach, lettuce, peas, kale, bok choy, garlic and more. I can probably start to lightly harvest some lettuce and spinach this week!

Finally, I have pledged to Go Pink next month, wearing Pink every day of June. I don't usually wear pink, so it shall be interesting! It would be great if you too could register for a pledge or support my pledge. 😀

Until next time, my name is SJ Boehm and I am a fearless MBC warrior

Comments

So much good news to share!

I am really excited to share so much good news today! First up! So firstly, last week "ahead of schedule" I got my liver toxicity to the target range and this week it dropped even more to the "healthy" range! It recovered a lot faster this time which I am very grateful for. Secondly... My fund raising for the National Breast Cancer Foundation has been so successful, thank you!! To date I have raised $1,399 and my target was $1,000! In case you missed my last post I have pledged to WEAR PINK every day of June to raise money for breast cancer research. The National Breast Cancer Foundation have the goal of zero deaths from breast cancer by 2030. Which of course is great news for me! There are lots of ways to be involved besides donating, you can of course WEAR PINK with me! Whether you have some PINK items in your wardrobe, PINK shoes or sneakers or wear a PINK ribbon! I would love if you share pictures of your PINK on Facebook/Instagram or via personal messa...

How I am taking control since my diagnosis

Learning you have cancer can make you feel powerless and not in control of your own life. However, I have found other ways to take back or feel in control. #1 De-clutter and re-organising I have been slowly (as my energy permits) been decluttering and re-organising our home. There are a few reasons why I chose to do this, but I am finding even more benefits I did not know about as I slowly take more control of our home! I have come to realise how much clutter exhausts me, it makes me stressed and is overwhelming. This is the main reason I have not been able to continue my hobby of sewing/dressmaking. After my accident in 2019 my sewing room (aka junk room and place to hoard fabrics) became too much for me. I couldn't even be in the room without feeling stressed and anxious. I also realised I had a problem with hoarding fabric... Although decluttering the sewing room/home office is main the objective, I don't feel in a position to conquer that just now. I am start...

Take 2 of 'Operation Strangle'

Last week I was officially given the ok to resume one of my treatments...Ribociclib (aka my fancy pills). As I have mentioned before, it had made my liver "grumpy" and I had to stop taking it. For approximately the last six weeks I have been have weekly (and on occasion twice weekly) blood tests to check the toxicity of my liver. I have been working hard to get back on this medication because of the impact it has had for other MBC warriors out there, but there is a large part of me that has been dreading restarting also. Mainly due to the nausea and fatigue I felt last time. This morning was D-day, my Oncologist told me to wait until today so I got to enjoy Easter. I looked at my husband Phil nervously this morning as I was about to pop my first pill and what he said made me feel so much better.... Nothing like a war story to make you feel better! He said "when you are fighting a war, first you cut off the supply lines (my Letrozole does that, it starves the cancer fr...

SJ Boehm #mbcwarrior

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